I don’t talk about my chronic illness very often but this is exactly true. . .

I don’t talk about my chronic illness very often but this is exactly true. . .

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5 thoughts on “I don’t talk about my chronic illness very often but this is exactly true. . .”

  1. Andrea Christensen

    My years of constant migraines are behind me, but I still have trouble making commitments too far ahead of time. I have to convince myself that I’ll be okay and it’s okay to cancel if need be.

  2. Cassandra Firemark

    A-freaking-men! As someone with three chronic illnesses, I can relate to this so much. Some days I just can’t do all the things. Other days, I’m feeling fine and can do anything I want.

  3. Excellent. I similarly bristle when I hear that someone “lost their fight to cancer” as if they should have fought harder and they would still be alive. Ultimately the responses in this post come from people being totally unaware due to zero exposure (but once you are exposed THAT excuse is over forever), low understanding (and once faced with exposure that is up to the observer NOT the chronically ill), and/or self absorption (“they aren’t hanging out with me and filling MY needs” uhhhhh do you think they CHOSE this situation????!!!) So we need to teach our kids so they do not fall into any of these excuses and we need to open our hearts and minds so we don’t either. Illness should NOT be the target of shame or judgement – and neither should the repercussions of that illness (as in the lives that are limited by illness)

  4. Thank you, Annie. I don’t have a diagnosis of any particular chronic illness (yet…because I’ve ignored the patterns until recently), but know the life of not committing to events or being afraid I won’t be able to make it physically through an event without having to leave early. This thread is very helpful.

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